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When we do the best we can, we never know what miracle is wrought in our life, or in the life of another. -- Helen Keller (1880-1968) American Writer

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Showing posts with label Rhett Syndrome. Show all posts
Showing posts with label Rhett Syndrome. Show all posts

Thursday, May 26, 2011

For those parents who tube feed

As we all know accidents happen.  Sometimes the "button" that connects to a child's stomach pulls out or pops out.  Sometimes it needs to be  completely replaced.  A lot of doctors, hospitals or pediatricians may not carry the same style or size of g-tube button that you need.  It is very important that you keep an extra or several extras on hand in case of emergency.    Just a reminder to those of you who know and to those of you who didn't realize, it is good information.  I just came across this information in a book about children with Rhetts Syndrome.